49 Comments | leave a comment | RSS 2.0 for this post | trackback |
The experience of my own disablen son is not particularly helpful since he is nonverbal and generally well-behaved. But my youngest son’s quorum has dealt with a kid whose family was literally driven out of a neighboring ward because his peers would not tolerate his behavior. He’s doing really well now (six years later), although proper medication might explain much of the improvement. But one thing that I think helped was that the kid understood that the other quorum members were prepared to accept him if he didn’t make their lives miserable. They took it upon themselves to lay out to him what was acceptable and what was not. That way he knew that they were not just being mean to him. Also, the boys were enforcing their own rules, not their parents’ or leader’s rules. Depending on the nature of their disabilities, this might not be a sufficient response, but my point that the other boys have to be actively involved in whatever approach is chosen still stands. (And given that there are three of them, extra adult supervision will be necessary in any case.) |
What is their disability? |
It seems like there should be some way to help all the boys have a better experience. Are the disabled boys able to modify their behavior so that the other boys can have a meaningful experience? Is this happening for the mid-week activity as well? |
The disabled kids’ parents know their children best. What do they suggest? Are the kids mainstreamed in school? How do they handle the kids at home or in other social situations? Do the kids need an adult guide to sit with them during quorum meetings on Sundays? The abled kids’ parents might be helped if they were given the opportunity to hear from the disabled kids’ parents about the specific disabilities. What makes it easier for the kids? What makes it harder? What are the specific challenges presented by the disabilities and why is it hard/impossible/not feasible for the disabled kids to “suck it up and behave” in a classroom setting? The quorum adviser/teacher need to make changes in the classroom situation to meet the needs of each young man. Teacher training is in order, and there’s nothing wrong with seeking the help of a professional. If there aren’t any special ed-type professionals in the ward or stake, certainly the community/internet has resources/guidance. If the disabled kids are acting up and disrupting the class, is it feasible to bring the young men to their parents? Implement a visual reminder that tracks and rewards good/bad behavior appropriately (name on the board, one check if you’re bad again, two checks and your parents are called)? Is the bishop’s idea to give the parents respite for an hour or two? If that’s the case, then is there another adult who can take over when the boys cause problems. If your quorum meetings are the last of 3 hours, is there a chance that the block is just too long for these young men? Do issues of sitting still or eating on schedule cause problems? Do they need specific and predictable routines to succeed. Schools make adjustments all the time so that disabled kids and non-disabled kids can all learn and succeed to the best of their abilities. Church should be no different. |
Hmmm …. I think they need a helping hand for its generous |
I think the real question is….wait for it… Don’t you think he would just love the three and teach the others what it means and how to BE Christians? It sounds like the parents if the 7 could use the same lesson. How do you think the parents feel who have the three? Don’t you think they know their own kids and are reaching out for some love and help? And out of the seven days they could probably use one or two hours off to get spiritually fed themselves. Don’t you all really think this??? |
If the boys are in school, and receiving special ed help of any sort there, I would get permission from the parents to talk to their teachers/aides and see what systems and expectations they have in school. Then you could duplicate as far as is possible the same system of rewards/consequences/breaks, whatever at church. Consistency is always a good thing. And it would give you a good idea of what behavior you can expect from the boys. Chances are the 3 boys have gone through years of church classes with teachers tiptoeing around them, not really knowing how to handle the situation, and the boys have gotten used to taking advantage of the minimal expectations. |
“Now since we are in the bloggernaccle we are going to solve this problem right here in this post.” I just have to say how totally awesome that statement is. “the other boys have to be actively involved in whatever approach is chosen still stands.” I sustain LL’s comment. |
i can really feel for the “abled” kids, since my teenage daughter practically comes home in tears every week due to how the boys in her SS class act up (not disabled, just badly behaved teens with a teacher who can’t rein them in). my husband and i are at odds on this–he thinks she should just deal with it and go to class, i think she should be allowed to come to the adult class because it would be a better experience for her. currently my husband’s winning and i worry about long-term retention and hating church/SS. i’ll be anxious to get some ideas from the posters here. |
Let’s be careful not to demonize the 7 parents. I do think that there is a real concern (and there should be) over the experience the abled children are having. We pay a lot of lip service in the Church as to how the programs are there to supplement/complement the family’s efforts and the needs of the 7 abled youth do need to be accounted for. Remember, the shepherd didn’t marshal all of his resources into finding the 1 lost sheep until he knew that the other 99 were already safe (at least, that’s my reading). Having had a disabled brother myself, you simply cannot assume that the abled children will suck it up and accept it. I generally agree with #1 and #4, but it’s hard when we don’t know any specifics. |
Been there, done that… (both sides of fence w/ my own kids and as a Primary teacher). To the other good suggestions above, I’d add that the Bishop must make it a priority to get into that classroom an excellent teacher (possibly team of teachers)with experience with the particular disability. If he hasn’t got one, he needs to pray for one! Also, make sure the teacher has and uses “Teaching, No Greater Call,” and also is very familiar with the disabilities resources available on the Church website. |
I think making separate classes is a bad idea, but I’m not sure what approach would work. I do like the idea of talking to the parents and teachers about what has worked for the three disabled kids in the past. Maybe they can figure something out. |
I would say the disabled children should stay in the same class if possible. Obviously the current situation is not OK and something needs to change, the question is, is there any way to change it without removing the disruptive quorum members? If the ward can figure out how to do this, that would be ideal. But if the ward can’t figure out a way, separating the kids might need to be done. These kids probably are able to behave more appropriately in the right setting with the right structure and supports. That doesn’t mean that the teacher or anyone else in the ward has the ability to provide it. It takes a lot of training to be a special ed teacher. It doesn’t seem realistic or fair to expect just any ward member to be able to manage the disabled children after getting a few tips from the parents or finding out what the discipline system is at school. And it seems even more unfair to start judging anyone for not knowing how/being able to manage the situation. |
Jesus’s behavior is a poor example in this situation — as it is in most of them. Sure, He forgave the adulteress, but He spent the rest of His ministry peddling cheap aphorisms, healing people, and flipping out and spewing vituperative nonsense at practicing Jews. So unless you want to heal the disabled kids, or unless you’re predisposed to inundating the parents with cheap moralisms or verbally abusing them, being Chrislike in this instance is a pretty bad idea. My solution: Set up a 2nd quorum, with it’s own leadership and instruction. |
My bishop’s son has some form of autism. He usually ends up in Relief Society with his mother, walking around the classroom and interrupting our lessons instead of the YM. I think that disabled children ought to be cared for by their parents or professionals. |
I too would like more information on the nature of the disabilities. Just behavioral? Physical components? Comprehension issues? If I were in charge of this quorum, I would first meet with the Bishop, other YM instructors, and parents. I would like the parents to suggest strategies for instructing their children. I would also ask them what accommodations are included in their kids’ 504 and IEP plans at school and try to mirror those. I would try to develop a standard of instruction and behavior for the ir kids and ask them at what point they would like to be alerted of behavior issues (this varies widely). If I were the parent of a child I could reasonably predict was going to cause concern, I would have this kind of a meeting with my childs’ Church teacher every time that person changed. I would also ask for as much consistency as possible when it comes to who is teaching my child and how. I would also specifically alert the YM leadership and the Bishop whenever an adult in the ward had a successful experience with my child, hoping that would influence the bishop to keep that person in my child’s realm, and as positive reinforcement/appreciation–teachers/leaders need to know what works and that their efforts have been successful (sometimes it is hard to know). Depending on the nature of my child’s disability, I would feel comfortable having my child in a separate class for instruction. I would also suggest that an adult specifically called as a minder can be very useful, whether 1:1 or 1:3. A calm figure who can redirect behavior, quietly remind the child of appropriate behavior, or even take him for a walk through the halls and back to class to release some energy can be enormously helpful. If I were the parent of someone in the quorum with disruptive students. Of course, I would focus on Christ-like behavior, loving everyone, tolerating differences, yada yada. But I would also want to emphasize that Church is not all about them and making it a good experience for them as an individual. I would try to figure out a way that my child could reach out to disruptive students and try to help the situation. My sister was a good friend to a YM her age who rattled most everyone in the ward and she had a very positive influence on him and his behavior at Church and in Seminary–she gave him appropriate attention, made eye contact to communicate that he should tone it down, and made jokes to diffuse tension or redirect class attention. (That kid is like a different person today–medication, age, maturity, but also not feeling like a total mess-up in every aspect of his life, [which is what he had come to feel like] all helped). Anyway–I would try to help my kid be helpful. Of course, it would be most effective if I had tried to help him learn those things long before this situation came about. For me, having him leave class would not be an option. Frankly, he is not in YM class to gain knowledge (we can do that homestudy if he really needs something), he is there to learn how to love and serve and function in a group. Do these YM also have issues in SS? Have they had issues in Primary? How were those issues addressed? |
BTW–If parents are willing to be alerted to behavior problems and to participate in intervention, they can probably work out some notification system via text messaging–much less troublesome than physically seeking out the parents while you are also supposed to be teaching a lesson. One family in my stake has several teenage daughters with Downs Syndrome–they have their own YW lessons that are more appropriate to their intellectual level. They do opening exercises with the YW and then split at class time. It was a great relief to the YW leaders to get the OK from the parents, and all it took was asking. Every child deserves to feel that they are loved, and ignoring a bad situation does not feel like love. |
#1, In this case 2-3 boys are beyond attempts by anybody to modify their behavior to any real degree. #2, Disabled enough that they are essentially toddlers in large bodies. 2-3 are unbaptized and unordained. They will never leave their parents houses, hold a job or get married. #3, All kinds of solutions have been tried. 2-3 boys have an adult leader assigned just them. Nothing helps #4, The parents are totally against the idea of taking the disabled kids out of class. Period. They want the other boys to learn Christlike attributes from their kids. I think the disabled kids parents here actually have enough political power in our ward to get their way almost no matter what. Kids are not mainstreamed in school. This is really a conundrum. I am glad I am not the bishop. |
ESO, We have Downs, a child who had a stroke prior to birth and is essentially a toddler, and a child with severe Aspergers. The child with Aspergers is actually not that bad and is the least of the concerns but he has his moments. If it was just him this post would not have been written |
I don’t think attending a totally out of control class is a good way to “learn Christlike attributes”. |
ESO wrote about the 7 abled teens, But I would also want to emphasize that Church is not all about them and making it a good experience for them as an individual. Sorry, ESO. I’ll have to partially disagree here. At some point, the needs of the 7 abled individuals *do* need to be met. Maybe it cannot be evenly worked out (some priorities have to be assigned somewhere). But we’re being completely hypocritical if we say that the the needs of the 7 do not matter. They are the ones who will (hopefully) go on missions, get married, become Church leaders, and their needs do need to be met. I speak from personal experience here; maybe it’s best for everyone else if the 3 individuals are not in the class, *despite* the desires of their parents. And at some point, a stake leader might have to step in and provide some counsel and offer some alternate plans. (I had a severely mentally retarded who passed away when he was a teen, and sounds *exactly* like the second boy in bbell’s list. He never attended primary, etc. It was deemed to be too disruptive. My father basically cared for him by himself during the SS and priesthood hours (they’d sit in the back of the class and if things got out of hand, they’d leave). Was it fair for my father to miss out on years of meetings? Probably not. Could someone else have helped? Yes. Did they? No. But it doesn’t change the fact that the best solution was to *not* put him in a larger class.) |
I think it is a somewhat important point that the two most disruptive kids come from the same family. |
#18–hopefully they will leave their parent’s home–to a solid, respectable residential program. Sounds like the parents are out of touch with the real world. If the boys are not mainstreamed in school why would they be expected to be able to make it in YM’s with teachers that have no specialized training. My suggestion (BA in Special Ed; MA in Rehab Counseling & director of residential & Day program for individuals with MR)would be much like ESO describes. Open exercises together but an aide ready to take them out if needed. There must be consequences for inappropriate behavior. It might just be redirecting but something must happen. Speaking with the professionals in these boys life is also a must! Routine is important. Also is there any particular YM or ward member that has a connection with any of these boys with disabilities? Sounds like a peer mentor could help. Now that would be Christ-like. |
This is a great thread- the first thing I thought of was this quote from Elder Packer:
From his address The Moving of the Water. That talk and about a few others from General Conference may be helpful as the bishop considers the best course to take. As was mentioned above, there are are few resources on LDS.org on managing behavior, but in this situation I think it is essential that someone involved in the situation bring in someone with some real expertise in this area. While the parents of any of the children may be too involved in the situation to be that resource, there will likely be someone in the ward, stake or community who could offer some help. Most states have a parent center for parents of children with disabilities that would know of local resources that could be of assistance in this kind of situation. I have a taught a number of church classes of youth with significant disabilities and there is often no easy answer, but almost always some type of solution that in between full inclusion and complete segregation. While the Christlike thing certainly may be a renewed effort of love and acceptance, it may also be setting up a separate environment where one or more of those young men with disabilities can receive instruction and fellowship in a more structured environment. I’ve heard that 90% of inspiration is good information and unfortunately it can be difficult to expect priesthood leaders to know everything they need to on their own in order to make these kinds of judgments. God bless the bishop trying to work through the situation. |
Christopher, it’s good to see you hear. Thanks for the comment and the helpful links. |
Wade (#6): I think the real question is….wait for it… WHAT WOULD THE SAVOUR DO? What a great idea — just heal them completely like Jesus would have. That ought to solve the problems. Case closed! |
Queuno–I see what you are saying. I was thinking of how I would discuss the situation with my own 16 or 17 year old child. From my perspective, I would hope that by that time I would have fostered an environment in which he could have already gained a testimony and was ready to be of service at Church. My experience with youth classes is not that they are learning anything earth-shattering that someone attending Church for the previous 12-16 years wouldn’t know. I thin it is important for people to learn at some point in their lives that Church attendance is not about what they can get at Church, but also what they can give. People who don’t make that leap generally go inactive. I want to help my kids make that leap before they leave my home for the wild world. Being angry or frustrated that your class isn’t very fun because disabled kids are a part of it doesn’t seem like a great reaction to the situation, and certainly not a mature one. Now that bbell has elaborated, it seems that the two most affected kids may be better served in an alternative setting for classes. Do they participate in other YM activities? I’m not much for Church politics–if the parents aren’t on board with a separate setting, I think I would extend callings to them to teach that class, frankly. Either they can model a successful integration, or get a better understanding of the complications experienced. |
Sometimes you can cut the baby in half. Why not alternate weeks? Have a separate class one week and be all together the next. |
I have a severe hearing loss and during the years in YW found it to be unbearable because the cliquest girls knew which levels of sound I could hear, and which I couldn’t. It got so bad that going to the temple was a drag, and I eventually stopped going all together as a youth, because I couldn’t hear when people would whisper. SS classes were also unbearable simply because nothing was done to accommodate me. Eventually I aged out, moved out, and all the problems went away. I’m not inactive. What is the age group of this SS class? If it’s the 16-18 year olds, I (like the Bishop) wouldn’t do anything different simply because it’s a temporary problem that will go away once birthdays start making their rounds. If the able kid’s parents feel their child is going inactive all because of a lousy SS experience, they have bigger problems on their hands. As for the disabled children, and if this is a younger age group (meaning the problem will just transfer to different teachers for the next 6 years), separate classes is the best thing to do until they learn how to behave in a church-like setting. I would tell the parents that until their child can prove they are not disruptive to the other students, they will be in a different class that has accommodations for them. If they gripe about it, simply say it is how things are done, go write a letter to Monson. |
Since we’re talking about teenagers (not little kids), I think the seven non-handicapped kids can (and should) be part of the solution. Instead of seeing it as the adults’ attention being unfairly divided among the children, see it as an opportunity for the young men to learn about compassion and service. If you give teenagers responsibilities and high expectations, they so often step up to the plate. I would take each of the seven aside individually and talk to them about the situation — discuss with them the particulars of each of the three disabled kids. Show them educational materials on how to deal with the particular handicaps and don’t let it be a taboo. Some of the boys take an attitude of “I just don’t want to deal with their problems,” and those guys shouldn’t be pressured further. But of the seven, some of them will be willing and able to assist the other boys if they get the idea that people are counting on them. Obviously, they won’t be able to do what trained professionals can do, but their compassion can make a difference. Even twelve-year-olds, but especially older teens. Talk to them, listen to them, and treat them like grown-ups — you will often be surprised by how well they respond. They’re at an age where many want the opportunity to show you that they’re ready for grown-up roles. |
i remember interviewing my principal during my student teaching, and the topic of special ed came up. He supported accommodations for such students. but he also reminded me that i cannot forget the mainstream students in making those accommodations. |
Another thing to consider is how long has this been going on. Is it a new thing, or have these 7 boys been plagued with horrible classes year after year with teachers and assistants that are unable to create any sort of positive environment for these boys. Many of you seem to assume that these boys have had 12-16 years of awesome church experiences so they should be able to put up with a couple years of difficult stuff and just learn service from this experience. |
Given your description of the severity of the behavior and the futility of everything that has been tried I am a little confused about why the Bishop or the parents of the disabled teens think it should continue? What is the reasoning? I agree with those who have pointed out that by this age many teens can be part of the solution and may benefit from helping/interacting with the disabled teens in the group. But not all kids this age are at the same emotional or spiritual level. It seems extremely callous to me in the face of their distress to simply condemn them to more of the same or decide that they should be able to learn from it. I think even the most mature kids, those who have excellent training at home and who would not “go inactive” over something like this deserve to have a positive, uplifting experience at church. They should be able to have gospel discussions and learn principles of the gospel in these classes. That can’t occur in an out of control environment and even if it did, it is not meeting the needs of the “large toddlers”. |
Well, I have a daughter with Tourettes. When the kids at school engaged in some really nasty behavior towards her we let it slide. Her neuro and the neuropsych both told us our goal should be to get her to an older age without too much trauma. Sometimes you just have to understand that you are going to annoy the heck out of other people. I liked seeing I think that disabled children ought to be cared for by their parents or professionals. and So unless you want to heal the disabled kids, or unless you’re predisposed to inundating the parents with cheap moralisms or verbally abusing them together. Really, to say more, I’d usually want to know what disabilities the kids have, what medications, social learning and training they’ve been through (with my daughter 95% of our expenditures have been out of network or out of coverage) and how much time the parents spend on them and on teaching them in classes. Many disabilities do much better in small groups or with a parent helping to teach. On the other hand, if Church is the only respite the parents get, they may well go crazy too if they do not have a break once a week at Church. You’ve already pointed out that the kids are not mainstreamed at school, are not ordained and part of the quorum, and are Disabled enough that they are essentially toddlers in large bodies. 2-3 are unbaptized and unordained. They will never leave their parents houses, hold a job or get married. queuno makes excellent points. better than I could have. This is a situation well beyond one that can be clearly addressed in a short blog post. |
I found myself wondering how the three disabled boys affect one another. Is the experience of each less than it could be because the class has to accomodate not only him but also the other two as well? Does the disruption that one would cause increase the disruption generated by the other disabled boys and feedback to create a problem an order of magnitude bigger than would be experienced with any one of these boys on his own? |
Until recently, we’ve had a Down Syndrome girl in our ward primary and then YWs. Things went well. Leaders had to make accomodations to include her in positive ways, but my children never said a negative word about it. |
In my comment #36, I meant to say that John Mansfield has a point about the number of disabled children. Many leaders or programs or classes can accomodate one or two special situations. With 3, it really might take over the class. |
If the boys aren’t capable of being mainstreamed at school, then I would think they aren’t capable of being mainstreamed at church. I think whatever errors are made in mainstreaming the handicapped at schools are usually made when some kids go to school but actually shouldn’t, not in keeping them away when they could go to school. Don’t forget that the third boy, the one with Asperger’s is also a victim here as much as the “normal” kids in the class. He’s being treated like he’s developmentally disabled (ie, mentally retarded) when he’s not, just by being lumped in with the other two. Guilt by association. Poor kid probably thinks that everyone else thinks he’s “retarded”, and therefore he might think that he actually is. Asperger’s is an “emotional retardation”, and is not a matter of low IQ. Statistically, he has a greater chance at being higher than average IQ. He _is_ capable of social/emotional learning, but is just slower at it. Asperger’s people don’t learn social/emotional skills at an intuitive level or just “absorb” them like most people. It’s an acquired skill for them, like learning to play the piano. Things have to be specifically taught and practiced. Several good ideas are in previous comments, such as separate clasess for the 3. But create a separate class just for the Asperger’s boy, or mainstream him. Please don’t lump him in with the other 2. It would be as bad as treating a physically handicapped person as if they were mentally (IQ) handicapped. You’d be dooming him to a lifetime of low self-image and likely deluding him into thinking he _can’t_ learn instead of just learning social/emotional things _differently_. |
If everybody involved can abandon the adversarial relationship and assumethat everyone involved is a good person with good motives and look at it objectively as to what would benefit the most, they might work it out. But as long as the parents of the “normal” (is abled the new politically correct word)and the parents of the disabled children are calling each other names and trying to win, nobody’s going to win. |
Bookslinger, great point. From the info I’ve heard so far, if I were in charge I would lean towards a combined intro in the quorum and then a separate class for the 7 and the Asperger’s teen. In that separate class, I would look for ways to have them presenting a lesson or a game or something to the other class on a monthly (or take turns weekly in the intro portion) basis. |
Totally depends on what kind of disability we’re talking about. If they’re blind or deaf or something like that, then I don’t think there’s an issue. If it’s something like ADD or some compulsive behavior, well, my answer really still doesn’t change. Welcome to life boys! (and leaders!) |
Thanks for the comments all. I think the wisdom of the bloggernaccle has shined thru!!:) The boy with Aspergers is mainstreamed at church and mostly mainstreamed at school. I cannot evision a scenario where he is not in quorum and activities 100%. The other 2 are a totally diferent situation. I think that #40 probably handles it about right. The other 2 boys have A: Downs. Not potty trained B. A stroke prior to birth. He is very very disabled mentally and partially paralyzed. The class is a Deacons quorum. I think this issue will probably get more critical in Teachers quorum with resentment building up among the other boys. |
I am reminded of a cub scout den I had a couple years back. Of the six boys, five had social disability issues, two moderately severe, and three minor. After a while I realized that I was putting too much pressure on the single normal boy to not be a problem while I and my assistant kept the other five from busting down the walls and scattering to the wind. He was a great boy, but an eight-year-old can’t always be the calm one upholding order, and he needed the attention too that it was so easy to completely expend on the other boys who more obviously needed it. |
Whoa. I’m traumatized. |
Following EelKat’s link to her Facebook page, and from there to her website, I have no doubt that her bishop would refuse a temple recommend. She claims to be both Mormon and a “legally ordained minister”, which would probably give most bishops and stake presidents pause. She also claims that she “no longer believe[s] in belonging to a religion”, so I have to wonder why she’s making such a fuss over not being allowed to marry in the temple. She claims belief in a concept wherein “everything was created by a race of Aliens”, that angel visitations are the same as alien abductions, and that Jesus was not divine but was “an alien hybrid”. Looks like autism is the least of her problems with getting a temple recommend. My conclusion is that she is either a deeply disturbed and perhaps delusional person (beyond the scope of austism and directly into the range of several other mental illnesses), or that she is your basic internet troll. Her seeming lack of knowledge about basic church doctrine and administrative practices (a high priest boyfriend who asks for a special one-day temple recommend? bishops lasting less than 2 years?) makes me lean toward ‘troll’, but she may just be a very, very sick individual. |
Palad, Thanks for the research. Her comment is now history. |
bbell, What? That was some grade-A kookiness. And evidence of her craziness including her pending excommunication was only two clicks away. Can’t we allow her to hoist herself by her own petard? |
I converted her web page to a pdf, if anybody’s interested. :D It was just too weird to pass up. |
ARJ, I just do not want to feed trolls. |